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We hope that Jacob’s story and the enormous outpouring of support from around the world will have a lasting impact on raising awareness for this disease.
We hope that donations will be made, and a cure will be discovered as a result.'Each and every person who sent Jacob a Christmas card, a gift, a Facebook message or video, or a prayer made a difference in the final days of his life.
After being admitted to hospital in October, the family knew his time was short and help an early Christmas celebration at the start of November. Jacob was inundated with cards and presents, the latter of which will be shared with fellow children at the Barbara Bush Children's Hospital at Maine Medical Center.
The family decorated his hospital room with a Christmas tree, lights and fake snow. 'It's been surreal really,' his mother, Michelle Thompson Simard, told WCSH 6 at the start of November.